"My teacher told me tears would only cloud my vision and prevent me from seeing the path ahead," Wei said.įrom October 2003 to May 2005, within a span of one and a half years, Wei successfully completed all 16 courses and earned a college diploma in psychology. "Shed all your tears today, then wash your face and reflect on how to navigate your future." She brought a basin of water and imparted a profound piece of advice. One transformative moment came when Wei's school teacher paid her a visit. With broken bones, disability and the fear of being confined to home all her life, she found herself crying every day and even wrote many suicide notes. However, I had to drop out of school due to physical limitations, which came as a significant blow and had a profound emotional impact," Wei said. "I ranked among top few in my county in the senior high school entrance examination. Wei said that during her time as a student, she was fortunate to have encountered no discrimination from her classmates. "My mother sent me to school and told me to listen to the teachers attentively, while my grandfather always took me to the theater and greeted everyone he met with enthusiasm." They have treated me like any other child except that I was short and unable to walk," Wei said. "My family has always made me believe that I am not defined by my illness. Because of limited mobility, physical fragility and stigma, many patients can only stay at home and be trapped in bed all their lives. The pain that sounds tormenting is actually the easiest kind of difficulty faced by people with "porcelain doll" condition. "I eagerly tried to break a baked wheat cake, but to my dismay, my thumb ended up breaking along with it," she said. She vividly remembers a particular incident when she was just five years old. Reflecting on her struggles, Wei described how pain permeated her entire childhood. He said that his beloved granddaughter deserved to receive proper care and attention," she said. "My grandfather was filled with fury upon hearing that. They went so far as to suggest that her family should consider giving up. "I can't stand up, grow up and live long."ĭoctors initially predicted that Wei's life expectancy would be a mere 11 or 12 years. "Just 28 days after my birth, I fractured my left arm, and soon I was diagnosed with osteogenesis imperfecta, often referred to as a 'porcelain doll' condition," she said. "In my entire life, I had only less than a month of healthy days," said Wei, who hails from Guangping County in north China's Hebei Province. Not stopping there, Wei authored two books, extended her support to thousands of families affected by rare diseases, and shared her optimistic and positive outlook on life with tens of thousands of individuals through psychological counseling. Surmounting numerous challenges, she completed the self-taught higher education examinations within a year and a half. With a rare genetic disease known as osteogenesis imperfecta, which renders her bones as fragile as glass though, Wei standing just 1.2 meters tall has forged a resilient life that radiates with a brilliance akin to diamonds. TIANJIN, June 29 (Xinhua) - Wei Ruihong's struggles began a mere 28 days after her birth when she suffered her first fracture, and by the time she was 43, Wei has endured a staggering total of 31 fractures.
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